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LET'S 

CHANGE IN
SICKLE CELL

LET'S 

CHANGE IN
SICKLE CELL

There has been significant progress in the way we think about and treat sickle cell, but there's still more work to be done. Whether you’re living with sickle cell, a parent, caregiver, ally, or have sickle cell trait, you have the power to transform lives and spark new conversations. You can continue to spark change by staying proactive in sickle cell care and planning for the future.

There has been significant progress in the way we think about and treat sickle cell, but there's still more work to be done. Whether you’re living with sickle cell, a parent, caregiver, ally, or have sickle cell trait, you have the power to transform lives and spark new conversations. You can continue to spark change by staying proactive in sickle cell care and planning for the future.

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to Top
Photo of Renisha, living with sickle cell disease

LET'S 

CHANGE IN
SICKLE CELL

LET'S 

CHANGE IN
SICKLE CELL

There has been significant progress in the way we think about and treat sickle cell, but there's still more work to be done. Whether you’re living with sickle cell, a parent, caregiver, ally, or have sickle cell trait, you have the power to transform lives and spark new conversations. You can continue to spark change by staying proactive in sickle cell care and planning for the future.

Learn more about gene therapy, which is being investigated to treat sickle cell disease.

Learn more about gene therapy, which is being investigated to treat sickle cell disease.


Learn more about gene therapy, which is being investigated to treat sickle cell disease.

Being proactive matters. Learn how partnering with your care team can help you achieve change in your sickle cell care.

Being proactive matters. Learn how partnering with your care team can help you achieve change in your sickle cell care.

Explore current treatment options and research in sickle cell disease.

Explore current treatment options and research in sickle cell disease.

Every voice, no matter how big or small, can help spark change. Sign up to receive information and resources related to sickle cell.

Every voice, no matter how big or small, can help spark change. Sign up to receive information and resources related to sickle cell.

Building a Better Future in Care
SICKLE CELL

Change has already started. We’re all here to strengthen our community and advocate for better care in sickle cell.

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We tell the story.
We show the faces. Because the ones who have the disease, they’re fighting for their life.”

—Joyce, Parent 

We tell the story.
We show the faces.
Because the ones who have the disease, they’re fighting for their life.”

—Joyce, Parent 

Photo of Aaron, a sickle cell survivor, and Joyce, her parent.

Continue to spark change today and every day by visiting the Spark Sickle Cell Change Facebook page. This page is updated regularly and aims to be a hub for factual, science-based, and trusted sickle cell information. You can explore stories from real people living with sickle cell, uncover the genetics behind sickle cell, learn how to advocate for better care in sickle cell, and so much more. 

We're all in this, together.
We're all in this,
together.

At bluebird bio, we’re committed to supporting all those impacted by sickle cell. SparkSickleCellChange.com was created in collaboration with the below advocacy organizations who helped spark the making of this website.

Sickle Cell 101 logo
Sickle Cell Disease Association of America logo
As One Foundation logo
Sickle Cell Consortium logo
Cayenne Wellness Logo

No matter where you are in your journey with sickle cell, you’ll find information here for you. This site was designed to provide you with support in addition to your care team to plan for the future with sickle cell.

A heartfelt thanks to the patients, families, allies, and sickle cell community who have helped make the Be the Spark campaign possible. We hope their experience encourages you and your family as we continue to spark change in sickle cell. The people featured on this website have been compensated for their time by bluebird bio. Information provided by Be the Spark is for educational purposes and does not constitute medical advice.

All photographs for Be the Spark were taken by Dana Scruggs.
Read more about Dana.