Building Your
Community
Sickle Cell
Sickle Cell Disease Foundation of California
Sickle Cell Anemia Awareness of San Francisco
William E. Proudford Sickle Cell Fund
Advancing Sickle Cell Advocacy Project
Cortney Vega Sports Athletic Foundation
Foundation for Sickle Cell Disease Research (FSCDR)
The Sickle Cell Foundation, Inc.
Lockhart Morgan Foundation
Sickle Cell Foundation of Georgia
Sickle Cell Disease Association of Illinois
Sick Cells
Martin Center for Sickle Cell Initiative
Maryland Sickle Cell Disease Association
Greater Boston Sickle Cell Disease Association
Next Step
Sickle Cell Association of America – Michigan Chapter
Sickle Cell Foundation of Minnesota
Dreamsickle Kids Foundation
Sickled Not Broken Foundation
Sickle Cell Association of New Jersey
Queens Sickle Cell Advocacy Network
Sickle Cell/Thalassemia Patients Network
Piedmont Health Services and Sickle Cell Agency
Supporters of Families with Sickle Cell Disease
Sickle Cell Foundation of Tennessee
Cure 4 The Kids Foundation
Sickle Cell Association of Texas Marc Thomas Foundation
Sickle Cell Association of Houston
Sickle Cell Task Force
National Organizations
Axis Advocacy
Bold Plus for Sickle Cell
National Organization for Rare Disorders
oneSCDvoice
Sickle Cell Disease Coalition
Sickle Cell Warriors
Living with sickle cell can be challenging, but it’s important to remember that you’re not alone. Beyond your loved ones and care team, there is an entire sickle cell community, including advocacy organizations, who are here to help. These organizations can provide you or your loved ones with ongoing support and resources.
I can say that in my suffering of it, it provides other opportunities to bring awareness—to help
someone else to understand the disease.”
I can say that in my suffering of it, it provides other opportunities to bring awareness—to help someone else to understand the disease.”
REV. JIMMIE
Living With Sickle Cell
Explore the organizations below for more information
Explore the
organizations
below for more information
SparkSickleCellChange.com was created in collaboration with:
Additional support and resources include but are not limited to the following organizations. Although some of these organizations may be based in one state, their support may not be limited to those who live in that state.
Advocacy Organizations
California
Delaware
Florida
- Advancing Sickle Cell Advocacy Project
- Cortney Vega Sports Athletic Foundation
- Foundation for Sickle Cell Disease Research (FSCDR)
- The Sickle Cell Foundation, Inc.
Georgia
Illinois
Indiana
Maryland
Massachusetts
Michigian
Minnesota
Nevada
New Jersey
New York
North Carolina
Oklahoma
Tennessee
Texas
- Cure 4 The Kids Foundation
- Sickle Cell Association of Houston
- Sickle Cell Association of Texas Marc Thomas Foundation
- Sickle Cell Task Force
National Oranizations
Informational Resources
- 202 Sickle Cell Report Card
- American Society of Gene and Cell Therapy
- American Society of Hematology
- Centers for Disease Control and Prevention
- genehome
- Genetic and Rare Diseases Information Center - National Institutes of Health
- Genetics Home Reference - National Institutes of Health
- National Heart, Lung, and Blood Institute - National Institutes of Health
Podcasts
- Blood Brothers Podcast – Sickle Cell Association of Houston
- Cheat Codes: A Sickle Cell Podcast
- The Sickle Cell Podcast
Links are provided for informational purposes only. We do not make or imply any endorsement of external websites.