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Building Your
Community
Sickle Cell
Sickle Cell Disease Foundation of California  Sickle Cell Anemia Awareness of San Francisco William E. Proudford Sickle Cell Fund Advancing Sickle Cell Advocacy Project Cortney Vega Sports Athletic Foundation Foundation for Sickle Cell Disease Research (FSCDR) The Sickle Cell Foundation, Inc. Lockhart Morgan Foundation Sickle Cell Foundation of Georgia Sickle Cell Disease Association of Illinois Sick Cells Martin Center for Sickle Cell Initiative Maryland Sickle Cell Disease Association Greater Boston Sickle Cell Disease Association  Next Step Sickle Cell Association of America – Michigan Chapter Sickle Cell Foundation of Minnesota Dreamsickle Kids Foundation Sickled Not Broken Foundation Sickle Cell Association of New Jersey Queens Sickle Cell Advocacy Network Sickle Cell/Thalassemia Patients Network Piedmont Health Services and Sickle Cell Agency Supporters of Families with Sickle Cell Disease Sickle Cell Foundation of Tennessee Cure 4 The Kids Foundation Sickle Cell Association of Texas Marc Thomas Foundation Sickle Cell Association of Houston Sickle Cell Task Force National Organizations Axis Advocacy Bold Plus for Sickle Cell National Organization for Rare Disorders oneSCDvoice Sickle Cell Disease Coalition Sickle Cell Warriors

Living with sickle cell can be challenging, but it’s important to remember that you’re not alone. Beyond your loved ones and care team, there is an entire sickle cell community, including advocacy organizations, who are here to help. These organizations can provide you or your loved ones with ongoing support and resources.

Photo of Rev. Jimmie, who lives with sickle cell, discussing sickle cell disease awareness
 

I can say that in my suffering of it, it provides other opportunities to bring awareness—to help
someone else to understand
the disease.”

I can say that in my suffering of it, it provides other opportunities to bring awareness—to help someone else to understand the disease.”

REV. JIMMIE

Living With Sickle Cell

Explore the organizations below for more information Explore the
organizations
below for more information

Additional support and resources include but are not limited to the following organizations. Although some of these organizations may be based in one state, their support may not be limited to those who live in that state.

Advocacy Organizations

Every voice, no matter how big or small, can spark a conversation and action to help drive change for sickle cell. Sign up to stay connected through email with resources, support, ways to connect with others, and more information about sickle cell.

Recognizing how sickle cell impacts your life may help spark important discussions with others to bring changes in your care and the care of your loved ones. How does sickle cell affect you?